and life goes on

It's been over a week since Bayleigh was diagnosed.  Feels like an eternity...especially being snowed in for four days!  All I have to do is watch her...to watch all of the kiddos.  Honestly, I am just not sure what to think about the whole situation with Bayleigh.  There are good days (she has few seizures that we see), and there are not so good days (she has lots of seizures that we see).  Yesterday was a good day.  Today was a not so good day.  She had the longest seizure she has ever had, and it scared the life out of me...I kept wondering when it was going to end.  What's long?  Oh, about 15 seconds.  Yep, that's it.  Just 15 seconds...forever when you are a mom watching as your baby girl's eyes roll up under her eyelids.  And you don't know why.  What we have noticed is that many of her seizures are in response to something.  Playing peek-a-boo.  A kiss on the cheek.  Being tickled.  Splashing in the bathtub.  My heart breaks seeing that our interactions with her cause this.

So, still no answers.  Her medication dose will increase next week, and then we see the neurologist again to see how it is working.  I'm not convinced it is yet, but I have been told we have far to go with the medication route.  I have been researching and studying....trying hard to stay away from sources that may be alarming.  The internet is stupid.

The homefront is quiet right now, although that has not been the case for most of the week.  The kids are nuts...more so than usual.  And nutty kids make for a nutty mom.  If there is no school on Monday, I may be farming them out to our neighbors for cheap labor.  Heh.