First, THANK YOU to all who have been praying for our girl! The MRI came back normal! Praise JESUS! I am beyond excited! This means there is no serious underlying issue causing Bayleigh's disorder! What's next? The neurologist will explore one more option...genetic testing. Since two of our daughters have had a seizure disorders that have the same genetic markings, he will test Bayleigh. That can help with two things...one, there is gene therapy that can be done for HER, and two, it will show us if Bella and Bri are at risk as well. Since Bayleigh's disorder typically doesn't present until 6-12 years of age, they could still develop it. We still have to get her on the right medication and dosage. I am praying that next week's bloodwork indicates we can keep her on her current medication...it has the fewest and least serious side effects. So far, we have only seen drowsiness and occasional mood swings in her.
A huge weight has been lifted today. HUGE. We are truly blessed.
But let all who take refuge in you be glad;
let them ever sing for joy.
Spread your protection over them,
that those who love your name may rejoice in you.
For surely, O Lord, you bless the righteous;
you surround them with your favor as with a shield.
~Psalm 5:11-12~
1 comment:
so so so happy testing went well. I hope you have more answers soon. Many prayers.
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